The Original Intent Of This Blog

April 2006 - It seems vain to create a blog about me however, I realize that it is the most efficient way to provide accurate information about the status of my treatment and recovery so here I go .....

May 2009 - The cancer has returned, here I go again ...

December 2009 - I've finished chemo and am cancer free; I continue to receive Herceptin and the trial drug.









Friday, November 13, 2009

Round Two: Infusion #9

Yesterday was the ninth treatment and I did receive a reduced dose of the chemo drug, I am hopeful that my body will be stronger with a reduced dose. Today I have had the wonderful steroid high - I was wide awake at 3 this morning with flushed cheeks and lots of energy. I had a short nap this afternoon but it is evening now and the flush is disappearing and the steroid high is beginning to wear off.

I thought for this post I would share with you the details of one treatment - the procedures, drugs and financial cost.

When I am called back to the chemo room I am weighed and then told who my oncology nurse is for the day. The chemo room is very nice and rather than being one large room it has one large area and then a few smaller areas. It has one wall of windows and large comfortable recliners line the walls; you select your chair in the area where your nurse is stationed. There are a couple of large fish tanks and a separate room with a refrigerator, microwave, vending machines, a table and chairs. By each recliner there is an IV stand and throughout the room are carts with supplies. There are three or four bathrooms in the room and a few more in the hallways outside - it's important to have bathrooms close by because of the amount of fluid we receive as well as the amount of water we drink during treatment.

I select a chair within my assigned area that is the farthest from a vent because it gets cold in there. Once the medical assistant takes the vitals she brings a blanket from the warming oven and I get settled in with a pillow and the blanket. Randy pulls up a chair beside me and helps to unpack my bag: book, glasses, water bottle, ipod, etc; the recliners have a pop-up arm table on each side.

The oncology nurse brings the supply cart and then prepares to access my port: first is swabbed with betadine twice and then the betadine is removed with clean swabs; then a freeze spray is applied, I take a deep breath and the needle is popped in. The needle has tubing attached with a connection point and clamp. The port is flushed with saline and the first tube of blood is drawn and then "wasted" because the port line has saline the blood is diluted and thus not good for testing. Since I am in a clinical trial I have several tubes of blood drawn ... about six or eight tubes. I'm not sure if the lab at CBCC runs all the tests or if some of the tubes of blood are shipped off to the researchers to perform their own tests but I do know that CBCC runs the tumor marker test which takes several days and performs a quick test to check the level of red and white blood cells to insure I can receive chemotherapy.

Once the lab report is received and the nurse verifies the blood cell levels are adequate she attaches the IV bag of normal saline solution and then connects the bags of pre-meds which are two steroids and two anti-nausea drugs: methylprednisolone sodium, dolasetron mesylate, dexamethasone sodium, and tagament; the cost of the IV bag and the pre-meds is a little more than $600. I think it takes about 30 minutes to receive the pre-meds but I'm not too sure because the anti-nausea drugs make me sleepy and I often drift off to sleep.

Once I've received all of pre-meds the nurse requests from the pharmacy the clinical trial drug Pertuzumb (per-tuz-umb), by the way if I have not told you before the name of the clinical trial I am in is the Cleopatra Trial. If I remember correctly it takes one hour for this drug infusion and when it is completed vitals are taken. There is no charge for the drug since it is still a trial drug.

Then over a 30 minute period I receive Herceptin (Trastuzumab). Herceptin is the biologic drug which deals with the HER 2 issue, since my cancer returned I will receive this drug every three weeks for the rest of my life. The cost of the drug is $4,257.

The third and final drug is Taxotere (Docetaxel) - the chemo drug; it takes one hour for this infusion. The cost of the drug is $4,752.

The final procedure is to flush the port with saline and Heparin to prevent blood clots. Depending upon how long it takes the lab to run the blood test, our time at CBCC is about five hours. The total cost is $12,143 - the difference between the costs I have listed and the total cost are charges for needles, syringes, tape, wipes, micro filter, positive pressure cap, IV pole rental, hourly charge for the chemo room, IV tubes, Heparin, chemo waste charge, and etc.

I began receiving care from CBCC in November 2007 and until May 2009 the care was monthly port flushes and lab tests, and scans and check up every three months. The total cost from Nov. 07 through October 1, 2009 has been $220,128. A port flush is $194 and the monthly lab is $372. Scans are several thousands: a CT is about $4,000 and the PET is about $5,000. A Procrit injection (to promote red blood cell production) is $1,160 and a Lukine injection (to promote white blood cell production) is $780.

I am so very blessed to have an excellent insurance company with minimal co-pay; cancer is scary enough without having to worry if you can afford treatment you need.

Thursday, November 12, 2009

Round Two: Infusion #8

This morning I am scheduled to receive the ninth treatment at 8:00 AM, since I am ready a couple of minutes early I thought I would write a brief update about the eighth treatment.

I did begin receiving Lukine injections on November 1st - five injections over nine days. All in all the past three weeks have been very tolerable - I dislike the fatigue but it is better than it was.

I am ready for today!

Sunday, November 01, 2009

Round Two: Infusion #8

I cooked again today and it is wonderful to be able to do something that I love so much! Tomorrow I have a check up and if I were to take a guess I would guess that the white blood cells are not too bad and ... crossing my fingers and toes ... maybe I will not need Lukine injections. I've been wrong about this before but I'm not wrong about how much better I am feeling!


The Best Chicken Ever and the Best Ever Cast Iron Casserole Dish it was Cooked in:

1 Whole Chicken
1 Cube of Butter - Softned
Fresh Thyme
Fresh Oregano
Fresh Italian Parsley
Minced Garlic
Kosher Salt and Pepper
1 Lemon
1 Onion
Olive Oil
2 - 4 slices of day old bread or a rack for the chicken to sit on while baking
Red Potatoes and Carrots


With a paper towel pat the chicken dry inside and out. Cut the lemon and onion into quarters and stuff them inside the chicken.

In a bowl add the softned the butter, the seasonings and the herbs; with a fork smush it all together to make a nice paste.

Separate the skin from the breast of the chicken carefully so as to not tear the skin; separate as far as you can. Push all of the butter mixture into the opening you have made. Rub the outside of the chicken with olive oil and then place the chicken on a baking rack or place the bread in the bottom of the casserole dish and set the chicken on the bread.

Surround the chicken with red potatoes and carrots. Cover and bake in a 400 degree oven about 1 hour and 15 minutes then bake uncovered another 15 minutes - until the temp is 165. Let stand 10 minutes before carving.

Here's a picture ... after Randy and I had dinner.